Frequently Asked Questions
It stands for Improving the Health of Young PeoplE.
The project is funded by the South London and Maudsley NHS Trust and King’s College London National Institute of Health Research Biomedical Research Centre.
We are asking residents of the UK aged 16 years and older to take part in this project.
We aim to target people aged between 16 and 35. However, people older than 35 are also welcomed to complete the survey and use the resources.
We are particularly interested in this age group as we understand that late childhood to early adulthood continues to be a vulnerable period for the onset of long-term physical health and mental health conditions.
Yes, we take confidentiality very seriously. All personal identifiable information about you is regarded as strictly confidential and it will be stored separately to the information you provide as part of the study. Anyone taking part in the study will remain anonymous. Responses to the survey will remain confidential. However, there are times when confidentiality can be broken:
- If you are a risk to yourself, for example in cases where suicidal thoughts and plans are disclosed
- If you are a risk to others
- If someone under the age of 18 is at risk
If this is to happen, our aim will be to make sure you get all the help and support you may need.
If we think you are a risk to yourself or others, we will email you to offer support.
If you have given us permission to contact you to arrange for the donation of biological samples, we will recontact you in future to organise this. Giving a biological sample means giving a saliva sample. This is pain-free and unobtrusive. Providing this will allow researchers to conduct genetic analysis.
Questions asked will gather information about sociodemographic characteristics (age, gender, ethnicity), work, school and neighbourhood experiences, health behaviours and wellbeing, life events, help seeking, and health service use.
You can return to the survey up to 3 months after you have started it. You will receive two reminder emails in this time. Your link expires after 3 months.
Yes. Email the HYPE Team (email@example.com) to say that you would still like to complete the survey. We will send you a new link. Please note that this means that you will have to start the survey form the beginning again.
Participation in the survey is voluntary. If you decide to take part, you are still free to withdraw at any time without giving a reason. You are still welcome to use the free resources.
In addition, you may also withdraw any information you provide us with, within one month after completing the study.
To withdraw, please contact the HYPE study team (firstname.lastname@example.org).
Yes, we encourage you to access the online resources and hope that you find them useful. You can evaluate our resources through the evaluation follow up survey. However, if you chose not to complete either the initial or follow up survey you can still access all resources for free.
There are no major risks involved in taking part in this study. Some survey questions cover sensitive areas. If you feel uncomfortable with any of the questions you do not have to answer them. You can stop the survey at any time without giving us a reason.
We would like to discuss findings from the completed study through The HYPE Project website and a regular newsletter. Results will also be shared through scientific publications, conference or workshop presentations and user groups.
HYPE members’ names will not be mentioned in any report or publication. Anonymised information would be made available only to valid research groups with full ethical approval for the research undertaken.
If you have any questions or require more information about this study, please contact the HYPE team using the following contact details: Email: email@example.com, Tel: 0203 8480462, Address: Department of Psychological Medicine PO84, Institute of Psychiatry, Psychology and Neuroscience (IoPPN), DeCrespigny Park, Denmark Hill, London, SE5 8AF.
If this study has harmed you in any way or if you wish to make a complaint about the management of the study you can contact King’s College London for further advice and information: (email: firstname.lastname@example.org, Address: Department of Psychological Medicine PO84, Institute of Psychiatry, Psychology and Neuroscience (IoPPN), DeCrespigny Park, Denmark Hill, London, SE5 8AF
List of definitions
Confidential: Information is restricted to those authorised to have access to it.
Personal identifiable information: Any data that could potentially identify a specific individual.
Anonymity/anonymous: Only the person completing the survey knows that they participated in the survey and cannot be identified. All identifying characteristics (personal identifiable information) are separated from publicly available data.
Genetic analysis: The study of a sample of DNA to look for mutations (changes) that may increase risk of disease or affect the way a person responds to treatment.